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  • 1 Debreceni Egyetem, Orvos- és Egészségtudományi Centrum Gyermekklinika Debrecen Nagyerdei krt. 98. 4032
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Az utóbbi néhány évtizedben ugrásszerű fejlődést mutató gyermek-szívsebészeti, illetve -kardiológiai ellátás területén napjainkban joggal merül fel az igény a kezelés eredményességének betegszempontú elemzésére. Az életminőség-mérésekkel kapcsolatos szakmai elvárások, illetve azok felhasználási lehetőségei gyakran ismeretlenek a gyakorló orvosok számára. A gyermekkori mérések számos nehézsége, a korrekt vizsgálatok alacsonyabb száma miatt ez különösen igaz a gyermekgyógyászat területére. Cél: A gyermekkardiológia területén zajló életminőség-mérésekkel szemben támasztott alapvető szakmai elvárások és az eddigi vizsgálatok eredményeinek klinikai szempontú ismertetése. Módszer: Irodalmi áttekintés felnőtt-, illetve gyermekkorú, szívfejlődési rendellenességgel született vegyes populációs és speciális betegcsoportok körében végzett életminőség-mérésekről, a vizsgálatok fő eredményeinek és alapvető módszertani jellemzőinek bemutatásával. Következtetés: Az eddigi vizsgálatok eredményei szerint az életminőség-méréseknek helye van a gyermekkardiológiai ellátásban. Megfelelően kivitelezett mérésekkel a gondozás színvonala javítható.

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